Sorry it has taken so long to hear fom us, there is so much to tell since our stem cell transplant on May 2. See extended entry for after tansplant details. We have been going to clinic for the past 3 weeks twice a week . The first week he received blood and platelet transfusions. Today we had great news! After his platelet transfusion his platelets dropped from 67 to 31. He then increased to 41 and now he is at 61 today on his own without a transfusion. Thank you Dr. Gilman and thank you Eric(dad). Your stem cells are engraphing. His hemoglobin is at 10.2. Go Cooper. We are still struggling with the feeding but he is cutting two teeth which we think has a lot to do with it but overall, he is doing great! Thank you to all of Wilmington, Carolina Beach, Burgaw and all the wonderful people in our community for all of the fundraisers you have participated and donated to our precious baby Cooper. There is no place like home and we can't wait to get there. God bless !
Cooper came off the nasal cannula(oxygen). We never thought we would see the day he would breathe on his own again but by the grace of God he did it.He began physical therapy and started meeting markers pretty quickly. His spleen and liver decreased dramaticly so he could actually kick his feet over his stomach which up until this point was impossible because his stomach was so distended. He found his feet and what an amazing thing that is to him.Cooper developed a gvhd rash on day +6 after the transplant. It looked like tiny red dots around his eyes and raised spots on his arms that spread down his torso and down his legs, in the groin and armpit areas after a day.That is where his body was fighting Eric (dads) stem cells. He was treated with a steroid cream and his iv steroid was increased. It seemed to help. The rash went away within 21/2 weeks and has not returned yet. He had a lot of problems with tolerating feeds . He got sick pretty often. He also had chronic diahrrea (which he has had from the day he was born)and inreased heart rate and respirations.We moved to the floor after being in the pediatric intensive care unit since the beginning of February on May 17. His ng tube was taken out on May24 and he was introduced to the bottle for the first time. After two weeks we were discharged and moved into an apartment 10 minutes from the hospital because we have to stay in the area for 90 days after transplant.
Comments (1)
THE WEBSITE LOOKS GREAT!HOW AWESOME TO BE ABLE TO COMMUNICATE WITH NOT ONLY YOUR FAMILY AND FRIENDS BUT OTHER FAMILIES GOING THROUGH SIMILAR SITUATIONS.WE JUST GOT BACK FROM DISNEY- I'LL CALL YOU . PLANNING ON COMING TO SEE YOU SOON
Posted by KRIS PRITCHARD | June 25, 2006 1:14 PM
Posted on June 25, 2006 13:14