Cure 4 Cooper

Cooper is doing very well. As of last Thusday, his platelets were at 115. His hemoglobin was at 10.9. Dr. Gilman said we will probably not need blood transfusions or platelet transfusions anymore. We are so excited yet so scared at the same time.Hisfeedings are still day to day. He eats well one day and then he eats poorly the next. But he is doing a lot better than 2 months ago from 10ML per day to over 100ML per day. We are going to try to cut back on the TPN(vitamins and lipids through his central line into his veins) from 16 hours a day to 12 hoping his appetite increases. His poops have also dramaticly changed from 10 a day to 2. His beautiful cheeks are still chubby but have gone down dramaticly with the weening of the steroids. They are slowly weening his slew of meds also.Cooper is the sweetest, happiest baby. He is constantly giggling. Although, quite a bit behind on his motor skills, cognitively he is doing very well. He is so alert and aware of his surroundings, it is unreal. Thank you for your many thoughts and prayers and donations . We should be coming home real soon!

We are going home to Wilmington tomorrow July 31, 2006 after clinic. Cooper has exceeded expectations. His platelets are now normal at 157 and his hemoglobin is at 11.5. We will no longer be needing platelet and blood transfusions. Yea! He is eating over 300ML per day along with pears, bananas, carrots, and sweet potatoes which are his favorite. His TPN has been decreased in volume from 560 to 360 over a period of 12 hours. Hopefully if he continues eating as well as he is, we will be off of the TPN soon.